About Us
This foundation was created January 1, 2008 in memory of our daughter, Parker Reese. She was born with a rare birth defect known as congenital diaphragmatic hernia or CDH. Our mission has always been to help other families like our own through their journey with CDH. The foundation was created in Parker’s name but it represents all children and families of CDH. If there is anything our foundation can assist you with please contact us at
The Parker Reese Foundation Post Office Box 2199 Elizabethtown, NC 283371-888-PRF-CDH0
Angela Harlow said
We just found out that our Gavin has CDH. Your website and story is really helping us get through this tough time as we try to understand everything right now.
Rebecca Forbes said
Hello,
My daughter, Hannah, was born with CDH in November 2006. This is an amazing way to help families during such a heart wrenching time. Thank you for this generous gift!
Rebecca Forbes
http://www.carepages.com carepage name: Forbescdh
michelle said
hi
my son jaiden sanchez was born with cdh in february 2004. its great to now that its people that cares and are there to help true difficult times.
thank you
michelle sanchez
Lacy Baker said
Hi. My name is Lacy Baker. My son, Jon Mayson Baker, was born June 3, 2006 with CDH. He was born 3lbs. 11oz. He had surgery on June 6, 2006 to repair the hernia and was given a 50/50 chance of survival. I looked up the statistics online and they were even lower. It was such a heart wrenching time. He underwent 2 blood transfusions, numerous infections, and eating complications. Through prayers and family support our little one made it through. He is now 2 years old and is healthy as can be. His left lung is full size. If it wasn’t for his scar on his little stomach you would have never known anything was wrong. I am so blessed to have him and I hope anyone out there who is going through the same doesn’t give up. Keep praying and have faith. It is possible no matter the statistics the doctors give you. Good luck and God bless!!!
ingrid& alex houchin said
Thank you for your wonderful comments on our blog. It is amazing to read about your work and your dedication to raising the awareness about CDH. The first time we found out about Alina’s LCDH we felt so frightened about her future. It’s through sites like yours that we have learnt so much more about this condition and it has helped us make the right decisions for our daughter. Thank you for your continued support!
Good luck and God bless.
Ingrid, Alex & Alina ( diagnosed with severe LCDH at 12 weeks, has undergone FETO procedure, expected due date 22/1/09).
ittybittyblog said
Hi Jessica,
I was just wondering if you have a logo button for the Parker Reese Foundation that I could post on my blog?
darcy
Liz Nelson said
Your site helped me so much when I found out Nayeli was diagnosed with LCDH last year. You inspired me to start a foundation as well in helping families that stay in SF and have their babies with CDH at UCSF. You are an amazing couple for helping other families.
Liz Nelson
Krista and Mark said
Our son Elisha James Bold was born on September 17th 2006. He had a left sided Diaphragmatic Hernia and was on ECMO for 12 days. He is now almost three and doing great! He was born in Gainsville, Florida by the wonderful Dr. David Kays. I commend you for this sight. When we first found out Elisha had CDH we didn’t know where to turn. It’s a blessing that you have this sight out there for expecting families to read and learn more about CDH. I pray there will be more awareness out there soon. Thank you and God Bless you and your family.
Lisa said
Jessica, I havent been able to get in touch with you as timely as I should. I need to get a hard copy or the link to the app to be able to utelize Parkers house soon. Alannah is due to make her arrival at UNC in November, but I just dont see it being that late. All appears to still be the same though…stomach up, some intestines up, heart slightly tilted, however…liver is down, spleen etc is still down. We have kept this same dx since 19 weeks and Im currently 32 weeks. Amnio fluid is beginning to get elevated so its every week u/s for hydrops. YIKES! Thats a lot of gas, time, money and frustrations. Trying to balance other 4 kids and in the middle of marching band competition season! Again, I apologize for not being in touch as I should, but theres been sooo much going on!
Thanks for any info!