The Parker Reese Foundation

New Hope For Congenital Diaphragmatic Hernia

Archive for June, 2008

Keeping Seth In Our Prayers.

Posted by Jessica Singletary on June 28, 2008

Please continue to keep Seth in your prayers.  He is stable and still on ECMO.  Pray for lung growth and please continue to pray for strength for his family.  They are amazing people!  Go to the link below for pictures of Seth. 

http://www.sethvandyke.piczo.com/?cr=7

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Update on Seth.

Posted by Jessica Singletary on June 25, 2008

TAKEN FROM SETH’S CAREPAGE…..

Baby Seth was born this morning at 8:50. Weighing in at 9 pounds. He was taken straight to the NICU due to his lungs not being developed.

We got to see him for the first time about 1:30 this afternoon. The drs are not giving us much hope for his survival. But, we are praying for a miracle.

They have now moved him to the PICU to put him on the ECHMO (heart/lung machine). We are waiting to hear from the drs about how this went. This machine will take out the carbon dioxide and will put oxygen back into his blood.

Mom, is doing better right now than she was earlier today. She has had some major pain and pain medication. She will be in the hospital for about 3 days.

We will update later.

PRAY, PRAY for a miracle.

Love,

Mawmaw & Preacher Jody

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Welcome Baby Seth!

Posted by Jessica Singletary on June 25, 2008

I got word this morning that Baby Seth made his entrance this morning weighing in at 9 pounds.  No update yet on his CDH but hope to hear something later this afternoon.  Please pray for this family! 

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Van Dykes Update

Posted by Jessica Singletary on June 24, 2008

They are scheduled to deliver on Friday at 7:45 am via csection.  Please keep them and Seth in your prayers. 

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Update on the Van Dykes.

Posted by Jessica Singletary on June 18, 2008

I took this from April and Russell’s Carepage.  Please keep this family in your prayers. 

Well no one will be meeting Baby Seth this week. Unless he decides to come on his own. The amnio showed his lung maturity is not good right now. They said mature lungs should measure at 35,000 and his lungs are only at 11,000. (how they get these figures I have no idea.) Anyway, they also said that with CDH babies it can come back as showing they are not ready and they really could be but there is no way to really know. So now we wait. Again. We will be going to see the OB here at UNC on Thursday to follow up with him on things. Right now he is saying that we will wait til I’m 39 weeks-two more weeks!!!! That is unless he decides to come on his own, which if I go into labor they will take him.

I am disappointed about the results of the amnio. One because I had siked myself up to have him tomorrow, and two because I am miserable. I know the best thing for him right now is to stay put but I just hope I can make it 2 more weeks!! The dr did say that in the last weeks of pregnancy that the lung maturity can jump real fast so we will just have to wait and see. Plus we don’t know exactly how much the CDH is messing things up. On the ultrasound today he was taking some good practice breaths but apparently that doesn’t mean too much. He is still measuring a little over a week further. And he was weighing about 7lb 6oz. (we think-they didn’t actually say but we saw it on the monitor) Which would be about right with the way he has been going.

So we are just hanging out at the house now. I will have to tell you all about this house we are staying in next time. It is wonderful and so peaceful!!

Well unless anything changes I will probably do an update tomorrow or Wed. to let you know how we are doing.

Thank you for all your continued prayers-please keep them coming so his lungs will continue to grow and develop as best they can.

With Faith, Hope & Love,

April

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Another Angel.

Posted by Jessica Singletary on June 16, 2008

Please pray for Skyla’s family as they deal with the loss of their precious baby.  Skyla was born with CDH on October 13, 2007 and passed June 13, 2008.  Keep this family in your prayers.  She will never be forgotten and always loved by so many!

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