The Parker Reese Foundation

New Hope For Congenital Diaphragmatic Hernia

Our First Entry.

Posted by Jessica Singletary on June 2, 2008

So, this is our first entry. 

I’m both excited and nervous about this.  I have put this blog off for sometime now.  I didn’t know what I wanted to say or when I wanted to say it.  Did I want to wait until we had our approval letter from the IRS or just go for it and put our name out there now? 

So many wonderful things have been happening for the foundation that sitting still and quiet just isn’t fitting anymore.   I want to shout from the roof tops and tell every single person I run into about the foundation.  I want people to know Parker’s story and those of all CDH babies. 

For those of you who don’t know our story I will try to briefly share it.  Our daughter, Parker Reese, was born on May 7, 2006 with a rare birth defect known as congenital diaphragmatic hernia.  We were diagnosed at 29 weeks gestation and given a 50/50 chance of survival.  Her story had an ending we were never prepared for as we lost her 20 hours after her birth on May 8, 2006.  Our lives were forever changed by her life and death.  We will never be the people we were before Parker and we aren’t sure we would ever want to be those people again.  We are now fragile in so many ways but are finding our way through this journey through our faith in God, our family, friends and other CDH families. 

I made a promise to our daughter as she lay fighting for her life that I would do everything in my power to end congenital diaphragmatic hernia forever.  I have learned in the last two years that this journey is not going to be an easy one but it is one that will be rewarding on so many levels. 

Through Parker’s story we have met the most amazing people from here in the states, Canada, Turkey, UK, Austrailia, Switzerland and so many more.  We are not alone on this journey and we find so much comfort in that and we know that without them this would not be possible. 

Our lives have been richly blessed by our dauther’s life and in January 2008 we created a non profit organization called The Parker Reese Foundation.  Our mission is a simple one.  To help families like our own. 

I will update this blog some more tonight and for those of you who have CDH blogs or websites email me at jessica@theparkerreesefoundation.com and I will add them here.  If you know of an informational site or group let me know and I’ll add those as well. 

We are excited about this journey and ask that each of you continue to keep us, the foundation and all CDH families in your prayers.

Jessica

 

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3 Responses to “Our First Entry.”

  1. Jennifer said

    YAY for y’all! I’m so excited to see this part of your journey unfold. Great things are coming, I can feel it!

  2. risingangel said

    Jessica, the site looks amazing. I LOVE IT!!
    Let me know if there is anything you need (or want) me to do. I’m here!

    Shawn C

  3. Cristin said

    So excited for you! Adding this to my blog now.

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