The Parker Reese Foundation

New Hope For Congenital Diaphragmatic Hernia

Archive for January, 2009

After A 115 Days at Duke….

Posted by Jessica Singletary on January 31, 2009

John Carter Myers went home!!!  Writing it not only brings tears to my eyes but gives me goosebumps.  This little boy will inspire me for the rest of my life and even though we haven’t met each other yet I feel like he’s part of our family. 

Watching his journey over the last 4 months and getting to know his parents has been such a blessing.  They are awesome people and I wish that each of you could know them the way we do because nothing we could ever say on this blog would be adequate enough to describe the kind of parents they are.

Welcome Home Carter!!! 

We look forward to the next part of your journey…….

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Davis Is Here!!!

Posted by Jessica Singletary on January 30, 2009

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This morning at 1:05 a.m. Davis made his entrance into this world!  He is doing well so far but will still need our prayers for a healthy recovery.  Pray for mom as she is healing from the csection and for dad too just because.  These two are amazing people and they have blessed our lives in a way we’ll never be able to describe.

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Let the auction begin

Posted by Jessica Singletary on January 27, 2009

The auction is ready so check out the link and pass the information on to anyone you know who might be interested.

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4th Family Moved In

Posted by Jessica Singletary on January 20, 2009

Our 4th family has moved into Parker’s House.  They got settled in Sunday night after a 5 hour drive from Brevard, NC.  They are both amazing and we are so humbled that we are able to help them during this difficult journey.  They are scheduled to be induced on February 2nd so please keep them in your prayers.

This foundation and the people behind it continue to amaze me daily.  In less than 8 months we have been able to give temporary homes to 4 families who needed it and I know that this is just the beginning of what the foundation has to offer families diagnosed with CDH.  It might not seem like much but if you could see the expressions on the faces of these families and the emails we get daily from them and the relationships that have been formed it truly is priceless. 

We have added a new event to our fundraising list for next year and cannot wait to share all of our events with y’all as the details become available.  We are all excited about spreading awareness and offering support.

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CDH Awareness Petition and CHERUBS

Posted by Jessica Singletary on January 17, 2009

*****UPDATE*****

I went on the petition Saturday to post a comment and somehow my comment disappeared but my name didn’t.  We have never supported the trademark and for those of you have questions please leave an email address so that I can respond to you appropriately. 

To JenniferWe do not work with Elizabeth and Breath of Hope.  Whoever gave you that information is completely mislead.   I do speak to Elizabeth because I want to.  I don’t have to agree 100% with someone to speak to them.  I am sure you have friends or acquaintances that you speak to that you don’t agree with 100%.   I do not like Dawn Torrence because she lies.  She wants people to think she’s a martyr and a victim and she’s not.  She’s a liar.  I have never bad mouthed her or CHERUBS for fighting the trademark.  Get your facts straight.  We did support the petition when she approached us in August.  We asked her to please put our name on the petition and she REFUSED.  When I asked her why she said we missed a deadline so we decided to just separate ourselves from it altogether.   And now she wants to say we support the trademark and she knows that is a lie.  We don’t have to work with CHERUBS to show our support to CDH families.  We do that everyday without them or Breath of Hope.  After talking with many families that we support we decided to stay out of the mess because there are many of them that are sick of the whole situation.  They have each told us that both groups are putting a bad taste in their mouths.  We have done what our families have asked of us.  We will spread awareness until we turn blue in the face with or without a petition or trademark.   You are completely entitled to your opinion and I respect it but please get the facts straight and not from Dawn Torrence who has a habit of twisting them to suit her mood.  I can assure you that many CDH families have NOT signed that petition because they don’t want to get mixed in the cross fire and we stand with and for them.  We offer hope and support to families on a daily basis and that will never stop.  We will not be defeated or beaten down by anything anyone says to or about us.   We are going to continue what we do and that’s support CDH families in any way they need us.  And I’m too busy supporting CDH families to play games, Jennifer. 

And by the way why is the PRF the only organization being blasted when there are other CDH organizations that I know refuse to be a part of this????  Something to think about.  It seems to me that it’s more personal than anything.  This isn’t a competition to us and it never has been.  We are humbled by the opportunity that God has given us and I pray that soon a resolution is found so that CDH families can go back to some sort of normalcy.  They deserve that. 

*******************************************************************************************************

It was brought to my attention today that the President and Founder of CHERUBS listed my name personally and our organization on her petition against the CDH awareness trademark filed by Breath of Hope, Inc. 

It is very important that all CDH families know that The Parker Reese Foundation DOES NOT support the trademark.  We were approached by Mrs. Torrence in August 2008 and we immediately approached our board to vote.  Once the votes were in we approached Mrs. Torrence on 3 different occasions requesting she add our name to the petition and she refused.  She said we missed the deadline that we were never given to begin with but yet she is constantly adding things to the petition daily.  And now says we support the  trademark when she knows differently.

When she refused our support we approached the President of Breath of Hope, Inc. ourselves to try and find a resolution to the problem.  When that didn’t work we decided that we would just continue to support families like we have been doing the last year and that we would not let this distract us from serving out our mission. 

If any of you have questions or would like to see copies of our emails to Mrs. Torrence and CHERUBS we will gladly email those to you.  Please email me privately at jes_singletary@yahoo.com . 

We have emailed Mrs. Torrence asking her to please remove our name in support of the trademark from the petition today.   I am deeply sorry that each of you have been drug into this mess of a situation but please know that we are here to support CDH families. 

Sincerely,

Jessica Singletary

President

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Absolutely Amazing!!!

Posted by Jessica Singletary on January 15, 2009

So today I got home from work (late) and I was in the process of cleaning my house when the phone rang.  I assumed it was Ashley telling me he was on his way home from basketball practice (he coaches the little boys from church) but it was Shawn from Manitoba, Canada.  She serves on the board and totally rocks! 

Long story short because I’m so completley excited I cannot keep it in any longer…. The Parker Reese Foundation received an autographed fiddle from Charlie Daniels.  And an autographed picture to Parker from Kat Von D.  YAY!!!  We are going to auction the fiddle and put the picture in Parker’s House. 

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