The Parker Reese Foundation

New Hope For Congenital Diaphragmatic Hernia

CDH Babies Everywhere!

Posted by Jessica Singletary on June 17, 2009

Currently the Freeman family from Hayesville, NC are calling Parker’s House home while their son Elijah battles CDH at Duke Hospital.   Eli is two weeks old and holding is own.  He weighed 2 pounds and 15 ounces at birth and is getting ready to prepare for surgery. 

We have another family moving in on the 23rd, Casey Briton, and she will be delivering a boy, Daniel, on July 11, 2009.  She is from Washington, NC.

James5

Baby James Reeve  in London has made his grand entrance on June 9th at 9:20 p.m. weighing 6 pounds and is doing very well.    He is off the morphine and on paracetamol.  He has been taken off the ventilator and put onto a Cpap machine.  He has truly impressed the doctors and is fighting CDH his way!

Maximus Evan Griffin  should be making his entrance into the world sometime in September.  Mom and Dad have chosen to deliver at Shands in Florida. 

Baby Jackson Beal  is in Texas and will be here in August.  Candice and Rob are mom and dad. 

Baby Kamrynand sister Brooke made their entrance into the world today.  So far Kamryn is doing better than expected but still needs our prayers.  Stephanie, mom, is recovering fine although a little uncomfortable from the pain.  Dad, Shawn, is exhausted but very proud!

Avery Mae  is really needs our prayers.  She is recovery from a partial closure Tuesday and is just needing us right now.  Please keep mom and dad in your prayers as well.  \

All of these babies and families need our prayers tonight and every night.  The CDH rollercoaster is a tough one to say the least and every day brings something new whether good or bad.   Please take a moment to lift each of them up in prayer and visit their blogs to let them know you are there.  It means a lot to them.

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2 Responses to “CDH Babies Everywhere!”

  1. Sheryl said

    Our prayers are with all of these little CDH fighters! They are amazing human beings! Thank you for sharing their stories with us!
    The CDH journey truly IS a roller coaster. In fact, “Love in a Roller Coaster” is my CDH theme song, I sing it daily as I visit Jaime in the NICU-Roller Coaster, Oooo, Oooo, Oooo….”
    God bless to all,
    Sheryl
    Mom to Jaime (RCDH/Hemophiliac) and Jared (Hemophiliac)
    (http://jaimetrostandfamily.blogspot.com/)

  2. Angie Hunt said

    I do not have a child that has CDH, nor do I know anyone personally whom is affected by this horrible birth defect, but I am so very touched by every family that I read about that has had to deal with CDH. I feel I should be doing something to help these little babies! I have my letters ready to mail out in July and continue to pray every day for all of the families affected by CDH! I am so very blessed to have 3 healthy, beautiful children which I thank God every day that they do not have any problems and have grown to appreciate that every day of my life!

    My thoughts and prayers and with you all!

    Angie

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