The Parker Reese Foundation

New Hope For Congenital Diaphragmatic Hernia

About Us

This foundation was created January 1, 2008 in memory of our daughter, Parker Reese.  She was born with a rare birth defect known as congenital diaphragmatic hernia or CDH.  Our mission has always been to help other families like our own through their journey with CDH.  The foundation was created in Parker’s name but it represents all children and families of CDH.  If there is anything our foundation can assist you with please contact us at

The Parker Reese Foundation
Post Office Box 2199
Elizabethtown, NC 28337

1-888-PRF-CDH0

 info@theparkerreesefoundation.com

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12 Responses to “About Us”

  1. We just found out that our Gavin has CDH. Your website and story is really helping us get through this tough time as we try to understand everything right now.

  2. Rebecca Forbes said

    Hello,
    My daughter, Hannah, was born with CDH in November 2006. This is an amazing way to help families during such a heart wrenching time. Thank you for this generous gift!
    Rebecca Forbes
    http://www.carepages.com carepage name: Forbescdh

  3. michelle said

    hi
    my son jaiden sanchez was born with cdh in february 2004. its great to now that its people that cares and are there to help true difficult times.
    thank you
    michelle sanchez

  4. Lacy Baker said

    Hi. My name is Lacy Baker. My son, Jon Mayson Baker, was born June 3, 2006 with CDH. He was born 3lbs. 11oz. He had surgery on June 6, 2006 to repair the hernia and was given a 50/50 chance of survival. I looked up the statistics online and they were even lower. It was such a heart wrenching time. He underwent 2 blood transfusions, numerous infections, and eating complications. Through prayers and family support our little one made it through. He is now 2 years old and is healthy as can be. His left lung is full size. If it wasn’t for his scar on his little stomach you would have never known anything was wrong. I am so blessed to have him and I hope anyone out there who is going through the same doesn’t give up. Keep praying and have faith. It is possible no matter the statistics the doctors give you. Good luck and God bless!!!

  5. Thank you for your wonderful comments on our blog. It is amazing to read about your work and your dedication to raising the awareness about CDH. The first time we found out about Alina’s LCDH we felt so frightened about her future. It’s through sites like yours that we have learnt so much more about this condition and it has helped us make the right decisions for our daughter. Thank you for your continued support!
    Good luck and God bless.
    Ingrid, Alex & Alina ( diagnosed with severe LCDH at 12 weeks, has undergone FETO procedure, expected due date 22/1/09).

  6. ittybittyblog said

    Hi Jessica,
    I was just wondering if you have a logo button for the Parker Reese Foundation that I could post on my blog?
    darcy

  7. Liz Nelson said

    Your site helped me so much when I found out Nayeli was diagnosed with LCDH last year. You inspired me to start a foundation as well in helping families that stay in SF and have their babies with CDH at UCSF. You are an amazing couple for helping other families.
    Liz Nelson

  8. Krista and Mark said

    Our son Elisha James Bold was born on September 17th 2006. He had a left sided Diaphragmatic Hernia and was on ECMO for 12 days. He is now almost three and doing great! He was born in Gainsville, Florida by the wonderful Dr. David Kays. I commend you for this sight. When we first found out Elisha had CDH we didn’t know where to turn. It’s a blessing that you have this sight out there for expecting families to read and learn more about CDH. I pray there will be more awareness out there soon. Thank you and God Bless you and your family.

  9. Lisa said

    Jessica, I havent been able to get in touch with you as timely as I should. I need to get a hard copy or the link to the app to be able to utelize Parkers house soon. Alannah is due to make her arrival at UNC in November, but I just dont see it being that late. All appears to still be the same though…stomach up, some intestines up, heart slightly tilted, however…liver is down, spleen etc is still down. We have kept this same dx since 19 weeks and Im currently 32 weeks. Amnio fluid is beginning to get elevated so its every week u/s for hydrops. YIKES! Thats a lot of gas, time, money and frustrations. Trying to balance other 4 kids and in the middle of marching band competition season! Again, I apologize for not being in touch as I should, but theres been sooo much going on!
    Thanks for any info!

  10. Linda Holmes said

    Jessica, I am Baby Charlies grandma – we stayed at Parkers House. What a wonderful, peaceful place! Oh, and the Cardinal birds, how we enjoyed them (I’d never see one.}

    I am late in sending this little note of thanks – you and Ashley are doing wonderful work.

    Parkers House is such a wonderful place, I swear you can feel the love the moment you walk through the kitchen door. It felt like home immediately. And Paul – now he is one amazing person!! Thank you so much for all that you do for CDH awareness. It is so important that more people learn what CDH is and that we have more research dollars to try to fight this dreadful defect.

    I am trying to find a way to help with this fight. If you have any suggestions, I would love to hear them.

    Also, Jenny tells me that you keep her updated on the status of Parkers House CDH babies via Facebook. Could you include Charles and I on your facebook page? I do still read “Paw Paw, Maw Maw ahd Jamie Morris caring Bridge entries – what a wonderful family going through what has to be the hardest thing in their lives, I pray for them daily.

    Thank you again for all that you do.

    Linda Holmes

  11. Sandra Clark said

    My son was diagnosed with CDH in July, 1988. He went from Maryland to a Philadephia hospital where he passed away. He was a beautiful baby. I wrote a book called, “My Tears Count Too!” The book consist of three short stories based on fact, but I used fiction. The third chapter is called, “Dad, Why Is The Crib Empty?” A good read! Authorhouse.com, Barnes & Noble, Amazon, etc. Sandra Clark

  12. Sandra Clark said

    Sites like this are needed because when my son was diagnosed in July of 1988, there were only two pages of information in the medical books regarding CDH. I was given a C-Section and was very weak. My son was carried away for surgery. Later, the Maryland hospital felt the need to send my son to Philadelphis, where he would be placed on the ECMO machine. My husband and I drove. We stayed in a beautiful room at the hospital in the beginning and then we were put in a dorm setting with college students. It was not comfortable for me in the dorms, but I needed to be with my son who later passed in August, when I came home to attend my baby shower.

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