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New Hope For Congenital Diaphragmatic Hernia

Archive for the ‘CDH Angel’ Category

Clarissa Ann Jones

Posted by Jessica Singletary on May 29, 2009

Clarissa Ann Jones, infant daughter of Mr. Brian Keith Jones and Ms. Stephanie Tew, peacefully passed away Wednesday, May 27, 2009 at Duke Hospital, Durham, NC. Though her life was very brief, she will remain forever in the hearts of those who loved her.

Along with her parents, Clarissa is survived by her sister, Kayla Tew; maternal grandmother, JoAnne Nelson of Elizabeth City, NC; paternal grandfather, Michael Glenn Jones, Sr. of Elizabeth City, NC; paternal grandmother and her husband, Mr. and Mrs. Joe and Teresa Ivey of Coinjock, NC; paternal great-grandmother, June Creef Jones of Elizabeth City, NC; uncles, Edward Tew, Mike Jones, and Brent Jones; aunt, Kelli Jones; and a cousin, Edward Tew, Jr.

A graveside funeral service will be held Monday, June 1, 2009 at 3:00 pm at Highland Park Cemetery, Elizabeth City, NC with Rev. F. Joe Griffith officiating. The family will receive friends at their residence, 1403 Woodville Road, Hertford, NC. Twiford Funeral Homes, Memorial Chapel, 405 East Church Street, Elizabeth City, NC is assisting the Jones family. Condolences may be expressed to the family at http://www.twifordfh.com.

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Another Angel.

Posted by Jessica Singletary on May 27, 2009

Today, Clarissa Ann Jones, passed away at Duke University Medical Center in her mommy’s arms and with daddy by her side.  She was born last night via c-section.  This is the family that is currently occupying Parker’s House.  I cannot even begin to tell you how saddened we were to hear this news this evening.  Our hearts ache at the loss of yet another CDH baby.  Please pray for this family as they learn to put their family back together and heal what seems like a wound forever open. 

I will update with funeral arrangements as soon as I know them.

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Kaden Alex Kuehl

Posted by Jessica Singletary on April 21, 2009

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Kaden passed away yesterday evening in the arms of his mommy and daddy after a courgeous 17 day battle against CDH.  His story has touched and inspired all who read it.  Please keep his family in your thoughts and prayers as their hearts find a way to heal during this difficult time.

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Another Angel and Some Prayer Requests.

Posted by Jessica Singletary on April 15, 2009

Ava Rose Daher passed away at 35 weeks gestation.  Please pray for her family as they find a way to heal their hearts.  

And please keep Kaden in your prayers as he is struggling from day to day.  His family is holding it together and are an inspiration to all who meet them. 

Ruby is doing great.  Continue to keep her and her family in your prayers as well.

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Maxton’s Arrangements.

Posted by Jessica Singletary on March 24, 2009

 

maxVisitation
Wednesday March 25th
4-6pm
Whitsell Funeral Home
609 N Main St.
Sturgis, KY

Funeral Service
Thursday March 26th
2pm
Henshaw Christian Church
237 Chapel Hill Rd.
Morganfield (Henshaw), KY

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Another Angel.

Posted by Jessica Singletary on March 22, 2009

After 18 days of a courageous battle against CDH Maxton passed away last night in the arms of his parents.  Please say a prayer for this family that they will somehow find God’s peace and mercy during this difficult time.  Our condolences and prayers are with them.

Folks there are too many babies dying from this horrible defect and it’s time we all stood up TOGETHER to make a difference in the lives of those that CDH affects.   I am so angry that another baby has died and that another family will know what it means to bury their child.   I am more motivated today than I ever thought possible to beat CDH and I hope you will join me in whatever this journey may bring.

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