The Parker Reese Foundation

New Hope For Congenital Diaphragmatic Hernia

Posts Tagged ‘Congenital Diaphragmatic Hernia’

Heels For Hope

Posted by Jessica Singletary on October 13, 2008

Our logo for this event is completely and totally awesome!  Thanks so much, Shauna!  You rock girl! 

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Need Pictures.

Posted by Jessica Singletary on June 15, 2008

****** UPDATE ******

Cristin brought up a great question about before and afters.  If your child is a survivor of CDH please send two pictures.  A NICU pic and a current pic. 

Thanks, Cristin!

 

We are wanting to put pictures of CDH babies through out the house and are asking each of you to send us either a 4×6 or a 5×7 picture of your choice of your child.  It will give the house so much meaning and will show other families just what this house is all about. 

When Ashley and I were given this opporunity we were blown away by Rob and JoAnna’s (homeowners) generosity and we wanted to do it not just for Parker but for every child who has been and will be born with congenital diaphragmatic hernia.  I want every person who walks in this house to feel what each of us feel every single day of our lives.  I want them to know all of our children. 

Please start digging out  the pictures and mail them to us at:

The Parker Reese Foundation

Post Office Box 2199

Elizabethtown, NC 28337

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Keeping It Simple.

Posted by Jessica Singletary on June 8, 2008

We are 6 months into this not-for-profit thing and still loving every single minute of it.  I can tell you that it’s literally a full time job but it is absolutely the most rewarding job I have ever had. 

There are so many things that we have planned but are going to try and keep things simple the first year.  We are really excited about the foundation and getting it off the ground.  Our plan is to have our name in every hospital and doctors office in the United States by the year 2009.  It’s a huge goal but I believe that it’s something we can easily accomplish with a lot of hard work. 

I cannot wait for this foundation to really take off and our fundraisers to take place as I know that it will mean only wonderful things for CDH families.  We are going to change the face of CDH one family at a time. 

The ultimate measure of a man is not where he stands in moments of comfort, but where he stands at times of challenge and controversy.
Martin Luther King, Jr.

This is just the beginning and I promise each of you that we will make a name for ourselves and we will not stop until congenital diaphragmatic hernia is no longer.   If any of you are interested in helping please do not hesitate to contact us via email or telephone.   This is a ride you don’t want to miss.

 

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Our First Entry.

Posted by Jessica Singletary on June 2, 2008

So, this is our first entry. 

I’m both excited and nervous about this.  I have put this blog off for sometime now.  I didn’t know what I wanted to say or when I wanted to say it.  Did I want to wait until we had our approval letter from the IRS or just go for it and put our name out there now? 

So many wonderful things have been happening for the foundation that sitting still and quiet just isn’t fitting anymore.   I want to shout from the roof tops and tell every single person I run into about the foundation.  I want people to know Parker’s story and those of all CDH babies. 

For those of you who don’t know our story I will try to briefly share it.  Our daughter, Parker Reese, was born on May 7, 2006 with a rare birth defect known as congenital diaphragmatic hernia.  We were diagnosed at 29 weeks gestation and given a 50/50 chance of survival.  Her story had an ending we were never prepared for as we lost her 20 hours after her birth on May 8, 2006.  Our lives were forever changed by her life and death.  We will never be the people we were before Parker and we aren’t sure we would ever want to be those people again.  We are now fragile in so many ways but are finding our way through this journey through our faith in God, our family, friends and other CDH families. 

I made a promise to our daughter as she lay fighting for her life that I would do everything in my power to end congenital diaphragmatic hernia forever.  I have learned in the last two years that this journey is not going to be an easy one but it is one that will be rewarding on so many levels. 

Through Parker’s story we have met the most amazing people from here in the states, Canada, Turkey, UK, Austrailia, Switzerland and so many more.  We are not alone on this journey and we find so much comfort in that and we know that without them this would not be possible. 

Our lives have been richly blessed by our dauther’s life and in January 2008 we created a non profit organization called The Parker Reese Foundation.  Our mission is a simple one.  To help families like our own. 

I will update this blog some more tonight and for those of you who have CDH blogs or websites email me at jessica@theparkerreesefoundation.com and I will add them here.  If you know of an informational site or group let me know and I’ll add those as well. 

We are excited about this journey and ask that each of you continue to keep us, the foundation and all CDH families in your prayers.

Jessica

 

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